Impact Of Down Syndrome Among Families Who Have Children With Down Syndrome And Have Follow Up For Their Children At Tikur Anbessa Hospital In 2019.

Background:-.Worldwide Down syndrome is a common chromosomal abnormal condition .It is alsornknown as trisomy 21.Children with down syndrome have delay in growth and hypotonic thisrninterfere with feeding ,constipation lead to malnutrition, poor motor development, delay cognitiverndevelopment and mental retardation, congenital heart disease and risk of ear infection. The effect ofrnDown syndrome differs among individual depending on the extent of abnormality and the health carernservice availablernEven in developed countries despite the extensive knowledge of health conditions in children withrnDown syndrome, the impact of Down syndrome on families and access to health care for personsrnwith Down syndrome remains understudied. All these will affect family life differently. Thereforernexploring the impact of Down syndrome among families who have children with Down syndromernwill provide a paramount input for care providers, researcher and policy maker.rnObjectives: - To explore the impact of Down syndrome on family among families who have childrenrnwith Down syndrome and have follow up for their children at Tikur Anbessa hospital 20 in 19.rnMethods: -The researcher use phenomenological research design. Data was collected through in depthrninterview, Focus group discussion and key informant interview. These major categories was aggregaternfrom the raw data collection and then framework analysis and identify themes across all sources ofrndata.rnResult: - From the Analysis of the data six major themes were categorized. Non acceptance –Birth ofrnan abnormal child, Lifestyle changes, family relationship, unpredictable future of the child, basicrnservice and Societal and Community acceptance.rnConclusion:-The findings show that birth of a child with Down syndrome produces a lot physicalrnand psychological effect in parents. So parents need adequate support from Government andrnconcerned body in general and also from nurses in particular right from the very birth of a disabledrnchild. Therefore this study is important for nurses working with families having children with Downrnsyndrome. As nurses are the eye to blind, leg to amputate based on this ,it is their role to realize andrnaware of the problems faced by the families and should advocate necessary support.

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