Assessment Of Health Related Quality Of Life Of Children With Chronic Kidney Disease On Follow Up At Pediatric Renal Clinic Tikur Anbesa Specialized Hospital Addis Ababa Ethiopia.

Background rnChildren with chronic kidney disease face lifelong increases in morbidity, mortality, andrndecreased quality of life. As most of other chronic illnesses, CKD has hard impact on illrnchildren's and care givers life style, peer relationship, pain interference and social functioningrnmoreover CKD has impact on intellectual functions and behavioral characteristics includingrnanxiety and depression. rnObjective- To assess health related quality of life of children with CKD as well as theirrncaregivers‟ perception on their Childs performance and to determine the factors that adverselyrnaffect it. rnMethods and material: A cross-sectional analytical study conducted using a pre coded,rnpretested structured questionnaire including PedsQoLrnTMrn 4.0 scale score generic core and familyrnimpact module. Data obtained for demographic and clinical parameters of children and for eachrndomain of generic core and family impact module and data was analyzed using IBM SPSSrnversion 26. rnResults- 105 children with CKD aged 2-18 years, 61(58.1%) males and 44(41.9%) females werernincluded in this study. Among the child self reported domains of generic core scale, child‟srn„school performance‟ was most affected with mean of 74.91 (SD±22.29) followed with childrn„physical performance‟ 77.6±26.41. In the family impact module domains with mean also, thernmost affected being „school performance‟ with 75 (SD±19.89) followed with „physicalrnfunctioning‟ with 78.13 (SD±24.96). rnRecommendation: „School performance‟ and „physical functioning‟ were the most affectedrndomains in child generic scale and family impact modules. Optimal care requires attention notrnonly to medical management, but also to an assessment of health related Quality of Life factors,rnthat may help promote pediatric CKD patient‟s health like Implementation of a standardized toolrnand Multidisciplinary approach in addressing HRQoL in all CKD patients on follow up.

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