Effects Of Iciansens Disease Stigma On The Psychosocial World Of Survivors And Family Members

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This study attempts to examine the effects of HD stigma on the psychosocial world of survivors andrnfamily members. Data were collected from 60 survivors (30F&30M) and 60 family membersrn(30F &30M) residing in three different sites in Addis Ababa by means of structured interviewrnschedules. Qualitative research method (case studies) also used to gather in depth individual data.rnThe quantitative data were analyzed using descriptive statistics and t- test.rnThe result revealed that the survivors and family members experience seriuus kinds of emotionalrnand behavioral disturbances due to HD stigma. These include depression, anger, anxiety, andrnhaired towards general community. Termination from job, school dropout, divorce, etc. could alsornbe found as the cost paid of this stigma. However, the t-test result revealed that these effects arernmore severe in family member than survivors, and in females than males.rnRegarding the strategies adopted in managing stigma concealing the disease, denying,rndisplacement, telling unreal stories, social withdraw and restrictions in porticipating in socialrnjUnctions were used by the respondents. Absence of public education program about the dise08e-O-I'-----jrnlack of public awareness, lack of cooperation between professional workers and persons with HD,rnabsence of caunseling, lack of vocational rehabilitation, and societal negative attitudes towardsrnintegration were found to be the major hazards in the reintegration of them into society.rnFinally, the importance of counseling for the survivors and family members, health education for therncommunity, promoting the right, wellbeing, and education of females, provision of assertivenessrntraining especially to family members, awareness creation programme, etc. were recommended asrnstrategies jor the improvement ofHD survivors and family member life

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Effects Of Iciansens Disease Stigma On The Psychosocial World Of Survivors And Family Members

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