One Stone Two Birds The Role Of Families In Stroke Patients Care A Qualitative Study Among Stroke Survivors At Tikur Anbessa Specialized Hospital

Background: Stroke is the second leading cause of death and third leading cause of disabilityrnworldwide. After three months of sustaining stroke, 26% of stroke survivors require long-term rncare for long-term disabilities which includes mostly hemiparesis, speech problem, swallowingrnproblem, sphincter dysfunction, dementia and depression for which there will be dependence forrnperforming activities of daily living. So far, the role of families in stroke care is not studied in therncontext of Ethiopia but it is obvious that they have to adapt themselves to take care of theirrnpatient with what they know and think is caring. rnObjective: This study aims at explaining the role of families in stroke patients’ care amongrnstroke survivors at Tikur Anbessa Specialized Hospital. rnMethods: A qualitative study was conducted using qualitative content analysis approach. Wernused a purposive sampling finding the maximum variation in participants by age, gender, rnresidence, educational level, relationship to the patient, occupation, duration of stroke andrnmonthly income. An in-depth interview using a semi-structured questionnaire was conducted torncollect data by voice recording and the recording was transcribed verbatim then translated in tornEnglish language. Analysis was performed using an opencode software version 4.03. rnResult: A total of 26 participants were included in the in-depth interview and saturation wasrnachieved. There were 20 female and 6 male participants. Majority of the females were daughtersrn(8 participants) of the patients. The caregivers’ role included fulfilling patient’s self-care withrnhygiene, physical support in ADL, psychological and financial support. The challengesrnexperienced by the caregivers’ were problems with their physical well-being, psychologicalrndisturbances and disruption of their social interaction. There are challenges due to financialrncrisis, inefficient health care facilities like pharmacies, laboratory services and unavailablernrehabilitation centers. On top of these there was a challenge from knowledge gap from lack ofrnproper health education provision. The study also found out the common support systems of therncare givers which include families, friends, health professionals and others. There was a betterrnrecovery in patients with provision of rehabilitation and optimistic life styles like healthy diet,rntreatment adherence, continuation of follow up visits and provision of a health insurance freerncard for government services. rnConclusion: family caregivers have a notable role in the care of post-stroke patients’ and therernare undeniable challenges that are experienced by the caregivers which should also be taken in tornconsideration in planning a patient’s post-stroke care.

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