Social Impact Of A Colostomy On Families Of Children With Colorectal Disorders A Mixed Methods Study

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Background: Colostomy is one of the most commonly performed pediatric surgical procedures inrnTikur Anbessa Hospital. Even though most of the pediatric colostomies are reversible, patients stay arnlong time with the stoma because of the long wait list for surgery. Apart from medical complications,rnthis treatment imposes a tremendous change in lifestyle. It can cause social, financial andrnpsychological problems. Since parents play an important role in child’s life, it also impacts the wholernfamily as well. rnObjective To assess the social awareness to colostomy and the social, economic and psychosocialrnimpact on children and their care givers rnMethods: The study was a cross-sectional study with prospective data collection conducted fromrnOctober – December 2020. Both quantitative and qualitative data was collected in a convergentrnparallel design. Convenience sampling technique was utilized to select participants from TikurrnAnbessa hospital. rnResults: Thirty caregivers were interviewed for this study. Most of the parents were married (90%),rnyoung (mean age 30.6 years) and living in urban areas (70%). The indications for colostomy werernARM (53%) and HD (47%). The procedure was mostly performed in infants (mean age 6.5 months)rnand as an emergency (87%). Children stayed with a colostomy from 4 months to 6years (mean 22.8rnmonths). Medical complications occurred in half of the children but only 20% required reoperation. rnThe first reaction towards the colostomy was anxiety. Most parents stated that they did not getrnadequate counseling or training from doctors. Learning from other patients was the most helpfulrnsource of information. None of the patients used a colostomy bag and they expressed significantrnissues with stoma care. Almost all participants had to stay home to take care of the child and manyrnlost their jobs. They also faced difficulties in their social life because people are uncomfortablernaround a colostomy. Older children were not able to attend school. Around half of the participantsrnexperienced economic challenges because of the colostomy. rnConclusion: We found a high rate of psychological, social and economic problems on families ofrnchildren with colostomy. We recommend for the Ethiopian pediatric surgery association to work onrneducating the public as well as providing materials, training and support groups for families sufferingrnwith this condition. These children should also be given priority on surgical waiting lists.

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Social Impact Of A Colostomy On Families  Of Children With Colorectal Disorders    A Mixed Methods Study

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